This website is intended for patients with X-Linked Hypophosphataemia and their families in the United Kingdom and Ireland, provided by Kyowa Kirin.

Two women with XLH talking over coffee

More support

Wherever you are in the world there are organisations out there to support you.

XLH patient organisations – supporting those affected by XLH


XLH Alliance

Founded in 2018, the XLH Alliance is an alliance of patient groups for individuals affected by X-linked hypophosphataemia and related disorders. The XLH Alliance will direct you to organisations in your country that can provide information, education and a community to join that could provide support to you and your family. www.xlhalliance.org

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Welcome to XLH Link

This website is specifically designed to provide information about X-linked hypophosphataemia (XLH).
Please note that this website does not replace the role of a healthcare professional and it is always recommended that you seek professional medical advice.

Please select from the options below to access content relevant to you:

If you are a registered healthcare professional from outside of the UK please visit the
Kyowa Kirin international site.

 

This website is provided by the pharmaceutical company Kyowa Kirin as a service to medicine.

 

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KKI/UK/XLH/0334
Date of preparation: April 2022

XLH Link

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XLH Link - HCP Website

This Kyowa Kirin website is intended for Healthcare Professionals (HCPs) involved in the care of people with X-linked Hypophosphataemia (XLH).



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