This website is intended for patients with X-Linked Hypophosphataemia and their families in the United Kingdom and Ireland, provided by Kyowa Kirin.

Managing XLH

Management for Children

Management for Children

By treating children to increase their blood phosphate levels, doctors aim to reduce leg bowing, decrease bone abnormalities and pain, and improve their rate of growth.

Management for Adults

Management for Adults

There are a number of treatment options for adults with XLH. A specialist doctor will aim to find the best approach for your particular symptoms.

Dental

Dental

Because XLH affects your teeth and gums, it's important to get your dentist’s support and stick to a good dental hygiene routine. Here we explain why and how.

Medicines

Medicines

Medication to increase phosphate blood levels may be prescribed to reduce bone pain and improve healing. This is about decisions you may face when taking medication long term.

Your healthcare team

Your healthcare team

Your healthcare team is there to guide and support you through your journey with XLH. This article explains the different roles of the professionals you may meet.

Support for parents

Support for parents

Although the thought of managing your child’s XLH may seem overwhelming at first, there is support and guidance available.

Welcome to XLH Link

This website is specifically designed to provide information about X-linked hypophosphataemia (XLH).
Please note that this website does not replace the role of a healthcare professional and it is always recommended that you seek professional medical advice.

Please select from the options below to access content relevant to you:

If you are a registered healthcare professional from outside of the UK please visit the
Kyowa Kirin international site.

 

This website is provided by the pharmaceutical company Kyowa Kirin as a service to medicine.

 

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Date of preparation: April 2022

XLH Link

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XLH Link - HCP Website

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