Welcome to XLH Link. A website focused on sharing the real-life experiences of people with XLH, plus expert information, tips and ideas.
More on XLH
About XLH
Top 10 facts
Being diagnosed with XLH is the beginning of a journey. With the right knowledge and support many people learn to manage their condition without it managing them.
About XLH
Adult XLH symptoms
XLH symptoms vary from person to person. However, there are a number of symptoms to look out for that affect many adults with XLH.
Managing XLH
Support for parents
Although the thought of managing your child’s XLH may seem overwhelming at first, there is support and guidance available.
