Two women with XLH talking over coffee

More support

Wherever you are in the world there are organizations out there to support you.

XLH patient organisations – supporting those affected by XLH


XLH Alliance

Founded in 2018, the XLH Alliance is an alliance of patient groups for individuals affected by X-linked hypophosphatemia and related disorders. The XLH Alliance will direct you to organisations in your country that can provide information, education and a community to join that could provide support to you and your family. www.xlhalliance.org

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Welcome to
XLH Link

This website is specifically designed to provide information about X-Linked Hypophosphatemia (XLH) and assist with the correct assessment of the condition.
Please note that this website does not replace the role of a Healthcare Professional and it is always recommended that you seek professional medical advise if symptoms persist.

To continue to the website please select your country

If your country is not listed please go to the European page below

XLH Link

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XLH Link - HCP Website

This Kyowa Kirin website is intended for Healthcare Professionals (HCPs) involved in the care of people with X-linked Hypophosphatemia (XLH).



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