Wherever you are in the world there are organizations out there to support you.
Founded in 2018, the XLH Alliance is an alliance of patient groups for individuals affected by X-linked hypophosphatemia and related disorders. The XLH Alliance will direct you to organisations in your country that can provide information, education and a community to join that could provide support to you and your family. www.xlhalliance.org
This website is specifically designed to provide information about X-Linked Hypophosphatemia (XLH) and assist with the correct assessment of the condition.
Please note that this website does not replace the role of a Healthcare Professional and it is always recommended that you seek professional medical advise if symptoms persist.
To continue to the website please select your country
Germany
Spain
United Kingdom
If your country is not listed please go to the European page below
This Kyowa Kirin website is intended for Healthcare Professionals (HCPs) involved in the care of people with X-linked Hypophosphatemia (XLH).
Please confirm you are a healthcare professional
