Managing XLH

Management for Children

Management for Children

By treating children, specialist doctors aim to improve the rate at which they grow, reduce their leg bowing, decrease bone disease and pain and increase their phosphorus levels.

Management for Adults

Management for Adults

There are a number of treatment options for adults with XLH. A specialist doctor will aim to find the best approach for your particular symptoms.

Dental

Dental

Because XLH affects your teeth and gums, it's important to get your dentist’s support and stick to a good dental hygiene routine. Here we explain why and how.

Medicines

Medicines

Phosphate and calcitriol are prescribed to reduce bone pain and osteomalacia and improve healing. This is about decisions you might face when taking phosphate and calcitriol long term.

Your healthcare team

Your healthcare team

Your healthcare team is there to guide and support you through your journey with XLH. This article explains the different roles of the professionals you may meet.

Support for parents

Support for parents

Although the thought of managing your child’s XLH may seem overwhelming at first, there is support and guidance available.

Welcome to
XLH Link

This website is specifically designed to provide information about X-Linked Hypophosphatemia (XLH) and assist with the correct assessment of the condition.
Please note that this website does not replace the role of a Healthcare Professional and it is always recommended that you seek professional medical advise if symptoms persist.

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XLH Link

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XLH Link - HCP Website

This Kyowa Kirin website is intended for Healthcare Professionals (HCPs) involved in the care of people with X-linked Hypophosphatemia (XLH).



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